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Heart and Soul: Your Guide to Living With Congenital Heart Disease


An excellent guide for living with congenital heart disease.
 
Chapter 1: About This Guide (PDF)
Chapter 2: Congenital Heart Defects (PDF)
Chapter 3: Coping With Your Child’s Diagnosis (PDF)
Chapter 4: Visiting The Hospital (PDF)
Chapter 5: Navigating The Health Care System (PDF)
Chapter 6: Coping With Stressful Times (PDF)
Chapter 7: Growing Up With CHD (PDF)
Chapter 8: Just For Teens (PDF)
Chapter 9: Caring For A Child With CHD (PDF)
Chapter 10: If Your Child Needs Surgery (PDF)
Chapter 11: Preparing for An Emergency (PDF)
Chapter 12: Additional Supports and Resources (PDF)
Chapter 13: Record Keeping (PDF)
Chapter 14: Glossary (PDF)
Chapter 15: Diagnostic Tests (PDF)
Cover (PDF)
 
Recommended websites
 
Chapter 12 of Heart and Soul: Section on Internet Resources has excellent recommended links.
 
CHD online handbook
www.execpc.com/~markc/congenit.html
 
Congenital Heart Information Network
www.tchin.org
 
The Congenital Heart Disease Resource Page
www.csun.edu/~hcmth001/heart
 
Heart and Stroke Foundation of Canada
www.heartandstroke.ca
 
Variety Children’s Heart Centre, Winnipeg, Manitoba, Canada
www.vchc.ca
 
Royal Children’s Hospital, Melbourne, Australia
www.rch.au
 
Cincinnati Children’s Hospital
www.cincinnatichildrens.org
 
Children’s Heart Network, British Columbia, Canada
www.childrensheartnetwork.org
 
Cove Point Foundation, Johns Hopkins Children’s Center, Patient Education for CHD, University of Virginia, Charlottesville , VA, USA
www.pted.org
 
The Children’s Hospital of Philadelphia
www.chop.edu/consumer/jsp/pcfs/index.jsp

Little Hearts – Stories of Children with CHD
www.littlehearts.net