Working groups

Education and Communication (established 2003)

• Newsletters
• Annual Cancer Conference
• Community-based levels of care established
• Chemotherapy Administration Competencies for Community Pediatric Nurses
• Regional education and communication meetings
• Family Practice Oncology Preceptorship

Long Term Follow-up (established 2003)

Membership:

Sheila Pritchard (chair), Angela Pretula, Anne Carrelli, Carolyn Baba, Chris Fryer, Derek Prevost, Karen Goddard, Kristine Brownscombe, Lani Lardizabal, Marion Nelson, Mary McBride, Naomi Evans, Simon Earl

Updates: 

• Established guidelines for follow-up
• Model for transitional and adult follow-up in development
• Business plan for Adult Surveillance Program submitted to PHSA, January 2005 and November 2008
• Two recall projects for adult survivors of childhood cancer 

Pediatric Oncology Palliative Care (established 2005, tasks completed 2006)

Membership:

Caron Strahlendorf (co-chair), Hal Siden (co-chair), Bev Spring, Chris Fryer, Cindy Stutzer, Corrine Reich, Grace Chan, Hanna Reysner, John Mowry, Leanne Johnson, Nicole Kish, Tanice Miller, Wendy Amos

Updates:

• Norms of practice (PDF) for pediatric oncology palliative care completed
• Pediatric Palliative Care Checklist (PDF) developed, a teaching and care-planning tool
• Pediatric Oncology membership continues to work with Provincial Pediatric Palliative Care Network

Psychosocial Care (established 2005)

• Compiled list of community psychosocial resources/services
• Conducting a study comparing the psychosocial needs of patients and families living in urban and rural communities 

Research (proposed)

Personnel

• 0.5 FTE Medical Advisor since 2002
• 0.5 FTE Network Coordinator since 2003
• 0.5 FTE Administrative Assistant since 2004