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Working groups

Education and Communication (established 2003)


Membership: 

Anne Carrelli, Beverly Sieker, Chris Fryer, Dan Mornar, Grace Chan, Karen Craigie, Karen Janes, Kristine Brownscombe, Lani Lardizabal, Mason Bond, Nicole de Bosch Kemper, Paulina Chen, Shauna Kazeil, Tracey Stone, Tracy Barwise, Yasmin Tuff

Updates:

Long Term Follow-up (established 2003)

Membership:

Sheila Pritchard (chair), Angela Pretula, Anne Carrelli, Carolyn Baba, Chris Fryer, Derek Prevost, Karen Goddard, Kristine Brownscombe, Lani Lardizabal, Marion Nelson, Mary McBride, Naomi Evans, Simon Earl

Updates: 

  • Established guidelines for follow-up
  • Model for transitional and adult follow-up in development
  • Business plan for Adult Surveillance Program submitted to PHSA, January 2005 and November 2008
  • Two recall projects for adult survivors of childhood cancer 

Pediatric Oncology Palliative Care (established 2005, tasks completed 2006)


Membership:

Caron Strahlendorf (co-chair), Hal Siden (co-chair), Bev Spring, Chris Fryer, Cindy Stutzer, Corrine Reich, Grace Chan, Hanna Reysner, John Mowry, Leanne Johnson, Nicole Kish, Tanice Miller, Wendy Amos

Updates:

Psychosocial Care (established 2005)


Membership:

Andrea Johnson (co-chair), Joanna Chung (co-chair), Anne Carrelli, Carolyn Jacob, Chris Fryer, Dan Mornar, Elsa Felker, Grace Chan, Janette Champagne, Amrin Khan-Jamal, Joel Tourigny, Lani Lardizabal, Paulina Chen, Phyllis Ohm, Sandra Wyatt 

Updates:
  • Compiled list of community psychosocial resources/services
  • Conducting a study comparing the psychosocial needs of patients and families living in urban and rural communities 

Research (proposed)


To be developed
 

Personnel

  • 0.5 FTE Medical Advisor since 2002
  • 0.5 FTE Network Coordinator since 2003
  • 0.5 FTE Administrative Assistant since 2004

Updated October 2011