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Resources

General:

Childhood Cancer Foundation (Candlelighters Canada)
- Information Resource Centre (800) 955-4572, infocenter@LLS.org
Children’s Oncology Group and National Childhood Cancer Foundation
Macmillan Cancer Support - Europe's leading cancer information charity
National Cancer Institute
Pediatric Oncology Group of Ontario
St. Jude’s web site for professionals: Registration is free, but limited to doctors, nurses, health care professionals and researchers involved in the care of children with catastrophic diseases.
The Hope Portal - Developed by Children's Hospital Los Angeles - Resources

Brain tumours:

American Brain Tumor Association
BC Centre for Ability
Brain Tumour Foundation of Canada
Brain tumour trials
Canadian Brain Tumour Consortium
National Brain Tumor Society
Hospital for Sick Children, Toronto, Ontario: resource center for brain tumours

Alternative and complementary therapy:

A Patient’s Guide to Choosing Unconventional Therapies (PDF)
Complementary and Alternative Cancer Therapies
Memorial Sloan-Kettering Cancer Center
Quackwatch

Support groups:

BC Children's Hospital Social Work site
Cancer in My Family - for children aged 8 to 12. 
Planet Cancer
Teens Living with Cancer

Resources for Youth:

National Teen Network - get in contact with other teens with cancer
Contact:  mlye@childhoodcancer.ca 

The following books can be ordered from the C&W Bookstore or by calling 1-800-331-1533 ext 3.

~Cocktails: Facts for Youth about Mixing Medicine, Booze and Street Drugs

~The Family Care Book

~Your Plan-it:  Youth Health Planner

~Getting on TRAC - A Workbook for Youth

~Setting the TRAC - A Resource for Health Care Providers


Website for teens:
Re-Mission
Teen Info on Cancer
Video diaries and animations by young cancer patients:  http://www.jimmyteenstv.com/

Palliative care:

Canadian Network of Palliative Care for Children
Canuck Place (BC’s Children’s Hospice)
"Making Every Moment Count" - an awarding winning film on pediatric palliative care by Dr. Leora Kuttner. 

Survivorship:

Candlelighters: Cognitive late effects to the brain
Childhood Cancer Guides
Childhood Cancer Survivors:  A Practical Guide to Your Future
Long Term Follow-Up guidelines from Children’s Oncology Group

Additional resources for families:

Candlelighters Childhood Cancer Foundation
Caringbridge - setting up websites to connect with and update friends and family
CureSearch Children's Oncology Group Family Handbook
Make a Wish Foundation

National Children's Cancer Society (USA) - connect with other families, cancer resources
Pediatric Oncology Resource Center - a website by parents of kids with cancer

Canadian Cancer Society Camps:
Camp Goodtimes - Kids camp: for children aged 6-15 years, Teen prgram: for youths aged 15-18, Family program: children and youths aged 0-18 years and their family members

Research and ethics:

BC Cancer Agency Sociobehavioural Research Centre
Canadian Institutes of Health Research

 

Additional psychosocial support resources for professionals:

Psychosocial Resources - Campbell River & Comox Area (PDF)
Psychosocial Resources - Comox (PDF)

Psychosocial Resources - Lower Mainland (PDF)
Psychosocial Resources - Prince George (PDF)
Psychosocial Resources - Surrey (PDF)
Psychosocial Resources - Vernon (PDF)
Psychosocial Resources - Victoria (PDF)
BC Society of Occupational Therapists
Connections - BC Cancer Agency's Cancer Rehabilitation Network newsletter

Page updated November 2009