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Oncology, Hematology & BMT
 Quick Links
 
     
 

Resources

General:

Children’s Oncology Group and National Childhood Cancer Foundation 
Childhood Cancer Foundation (Candlelighters Canada)
- Information Resource Centre (800) 955-4572, infocenter@LLS.org
St. Jude’s web site for professionals: Registration is free, but limited to doctors, nurses, health care professionals and researchers involved in the care of children with catastrophic diseases.
National Cancer Institute
Pediatric Oncology Group of Ontario
Cancer BackUp - Europe's leading cancer information charity
The Hope Portal - Developed by Children's Hospital Los Angeles - Resources

Brain tumours:

Brain Tumour Foundation of Canada
Canadian Brain Tumour Consortium
Brain tumour trials
BC Community Brain Injury Program
American Brain Tumor Association
Brain Tumour support group
Hospital for Sick Children, Toronto, Ontario: resource center for brain tumours

Alternative and complementary therapy:

Quackwatch
A Patient’s Guide to Choosing Unconventional Therapies (PDF)
Complementary and Alternative Cancer Therapies
Memorial Sloan-Kettering Cancer Center

Support groups:

Teens Living with Cancer
Planet Cancer 
BC Children's Hospital Social Work site
Cancer in My Family - for children aged 8 to 12. 
 

Resources for Youth:

National Teen Network - get in contact with other teens with cancer
Contact:  mlye@childhoodcancer.ca 

The following books can be ordered from the C&W Bookstore or by calling 1-800-331-1533 ext 3.

~Cocktails: Facts for Youth about Mixing Medicine, Booze and Street Drugs

~The Family Care Book

~Your Plan-it:  Youth Health Planner

~Getting on TRAC - A Workbook for Youth

~Setting the TRAC - A Resource for Health Care Providers


Website for teens:
http://www.re-mission.net/index.php
Teen Info on Cancer:  http://www.click4tic.org.uk/Home

Video diaries and animations by young cancer patients:  http://www.jimmyteenstv.com/

Palliative care:

Canuck Place (BC’s Children’s Hospice)
Canadian Network of Palliative Care for Children
"Making Every Moment Count" - an awarding winning film on pediatric palliative care by Dr. Leora Kuttner. 

Survivorship:

Long term follow up guidelines from Children’s Oncology Group
Childhood Cancer Centre
Childhood Cancer Survivors:  A Practical Guide to Your Future
Candlelighters:  Cognitive late effects to the brain

Additional resources for families:

CureSearch Children's Oncology Group Family Handbook
"Talking with your child about cancer" - booklet from the Canadian Cancer Society (PDF)
Make a Wish Foundation
Candlelighters Childhood Cancer Foundation
Pediatric Oncology Resource Center - a website by parents of kids with cancer
National Children's Cancer Society (USA) - connect with other families, cancer resources
Caringbridge - setting up websites to connect with and update friends and family

Canadian Cancer Society Camps:
Camp Goodtimes - Kids camp: for children aged 6-15 years, Teen prgram: for youths aged 15-18, Family program: children and youths aged 0-18 years and their family members

Research and ethics:

Canadian Institutes of Health Research
BCCA Sociobehavioural Research Centre

 

Additional psychosocial support resources for professionals:

Psychosocial Resources - Campbell River & Comox Area (PDF)
Psychosocial Resources - Comox (PDF)

Psychosocial Resources - Lower Mainland (PDF)
Psychosocial Resources - Prince George (PDF)
Psychosocial Resources - Surrey (PDF)
Psychosocial Resources - Vernon (PDF)
Psychosocial Resources - Victoria (PDF)
BC Society of Occupational Therapists
Connections - BC Cancer Agency's Cancer Rehabilitation Network newsletter

Page updated November 2009