When Grayson was just three days old, he was admitted to BC Children’s Hospital. He was diagnosed with a rare metabolic disorder that means regular food can make him sick.
His parents, Chad and Wayne, know what it’s like to spend time with an ill child in the intensive care unit (ICU) – and want to support other parents who may be going through something similar.
Passionate about giving back to BC Children’s Hospital, Chad and Wayne started a ‘from our family to yours’ food box program for ICU families.
"We know all too well that when your child is in the ICU, your world becomes very small. As you focus all your attention on the well-being of your child, you start to skip out on the things that sustain you. You skip meals because you don’t want to leave your child’s bedside,” reads the note on the food boxes from Chad and Wayne to other parents.
Grayson has Maple Syrup Urine Disease that causes amino acids from proteins to build up in the body, with very serious and possibly fatal effects. Grayson is now a thriving 4-year old, but food is a central focus of their lives. Every amino acid consumed by Grayson must be carefully measured by Chad and Wayne.
Chad and Wayne’s note also says, “In this stressful time, we wanted to make sure that you have a way to stay nourished so you can continue to be there for your child. Please help yourself to the food in this basket!"
Many of the families touched by the food boxes have reached out to Chad and Wayne to contribute to the program. With their support, Chad and Wayne are now dropping off two boxes per week.
The boxes are beautifully decorated by a mother whose daughter had open heart surgery at BC Children’s Hospital.