The Hemoglobinopathy comprehensive care team consists of hematologists, nurses, social workers, and psychologists. Patients are followed at BC Children's Hospital until age 18 and then transitioned to St. Paul's Hospital for continuing care.
Currently, the Hemoglobinopathy program has approximately 85 patients and receives 5-10 new patients each year. This service provides comprehensive continuing care and support to children and their families across BC with inherited disorders of hemoglobin. These include beta-thalassemia major, hemoglobin H disease sickle cell disease, and other hemoglobinopathies.
This program also manages, supervises, and coordinates the chronic transfusion program and iron chelation therapy. When suitable, patients may be offered the option of bone marrow transplantation.
New patients are referred by community pediatricians and family physicians, and via Newborn Screening Program, Perinatal Services of BC.
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