Heart and Soul: Your Guide to Living With Congenital Heart Disease
An excellent guide for living with congenital heart disease.
Chapter 1: About This Guide (PDF)
Chapter 2: Congenital Heart Defects (PDF)
Chapter 3: Coping With Your Child’s Diagnosis (PDF)
Chapter 4: Visiting The Hospital (PDF)
Chapter 5: Navigating The Health Care System (PDF)
Chapter 6: Coping With Stressful Times (PDF)
Chapter 7: Growing Up With CHD (PDF)
Chapter 8: Just For Teens (PDF)
Chapter 9: Caring For A Child With CHD (PDF)
Chapter 10: If Your Child Needs Surgery (PDF)
Chapter 11: Preparing for An Emergency (PDF)
Chapter 12: Additional Supports and Resources (PDF)
Chapter 13: Record Keeping (PDF)
Chapter 14: Glossary (PDF)
Chapter 15: Diagnostic Tests (PDF)
Cover (PDF)
Recommended websites
Chapter 12 of Heart and Soul: Section on Internet Resources has excellent recommended links.
CHD online handbook
www.execpc.com/~markc/congenit.html
Congenital Heart Information Network
The Congenital Heart Disease Resource Page
www.csun.edu/~hcmth001/heart
Heart and Stroke Foundation of Canada
Variety Children’s Heart Centre, Winnipeg, Manitoba, Canada
Royal Children’s Hospital, Melbourne, Australia
Cincinnati Children’s Hospital
Children’s Heart Network, British Columbia, Canada
Cove Point Foundation, Johns Hopkins Children’s Center, Patient Education for CHD, University of Virginia
The Children’s Hospital of Philadelphia
Little Hearts – Stories of Children with CHD