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Cystic Fibrosis

We diagnose and care for infants, children, adolescents and their families who are affected by cystic fibrosis.
Clinic News

NEWS - August 16, 2018

This summer, wildfires in BC are again posing significant health, social and financial challenges to the population of our province.  Northern BC and the Interior have again been especially affected.  People with CF or other respiratory conditions are at risk of respiratory complications secondary to smoke exposure, including increased cough, wheeze or shortness of breath.  These symptoms are triggered by the inhalation of smoke particles.  Information about the health impacts of wildfires can be found on the HealthLinkBC website.

While ultimately, nothing but the resolution of this natural disaster will completely remove this risk, there are some steps that you can take to reduce its impact on your or your child's health.

  1. Keep up to date on the local air quality status in your area.  A link to the Air Quality Health Index (AQHI) can be found here.  The AQHI is based on the number of smoke particles found in the air at a particular location.

  2. Environment Canada has issued activity level recommendations based on the AQHI.  Those recommendations are listed in the image below.  In brief, if the AQHI is 7 or above, children with CF should reduce strenuous outdoor activity, especially if they are symptomatic.
    AQI.png
  3. On days where the AQHI is elevated, spend time in buildings where there is air conditioning (ideally air conditioning with HEPA particle filtration).  If you do not have air conditioning at home, public places like malls, community centres or movie theatres are good options.

  4. If you are experiencing increased respiratory symptoms, Ventolin (if you have a prescription) can be useful.  However, if the symptoms are pronounced or not responding the Ventolin, please contact the CF Clinic, your local family physician or Emergency Department.

  5. There is no evidence that commercially available masks effectively filter the tiny smoke particles that deposit into the lungs and are likely not effective.

Dr. Jonathan Rayment, MDCM MSc FRCP(C)
Paediatric Respirologist, BC Children's Hospital
Investigator, BC Children's Hospital Research Institute
Clinical Assistant Professor, University of British Columbia

July 16, 2018

EMOTIONAL WELLNESS

Emotional wellness screening (EWS) is now a standard of care for cystic fibrosis clinics.

 We recently evaluated our one year experience of EWS.

We captured 82% of our CF youth (12 years and older) and 92% of parents of CF infants (0-2 years).

Families felt …

  • Positive about the focus on mental health
  • Uncertainty about how EWS enhances their CF care
  • A lack of support and resources for mental health  

Looking forward

  • With support from a one-time government grant, we have hired Roma Palmer, a registered clinical counsellor to complete EWS and offer up to 5 sessions of counselling and cognitive behavioural therapy for CF parents of children ages 3-12 years.  
  • To learn more about Roma, please visit her website.

About

PURPOSE OF THE CF CLINIC

  • To assess and care for children from birth through 18 years old with a possible or confirmed diagnosis of CF, in cooperation with caregivers, family physicians and paediatricians. 

  • To promote optimal health and quality of life for children with CF by empowering families of younger children to care for their child independently through education and skill development and fostering a gradual independence of youth through developmentally-based transition care to ensure a seamless transfer to the adult healthcare system. 

  • To be a centre of excellence and leadership in CF care, by meeting and exceeding CF Canada's standards of care.

  • To foster research of potential benefit to patients with CF and to their families.

  • To teach medical students, interns, residents and allied health students about the care of children with CF.

Clinic Staff

Physicians

Dr. Mark Chilvers, MBCh, BSc, MD, MRCPCH
Clinic Director, Pediatric Respirologist

Dr. Connie Yang, MSc, MD
Pediatric Respirologist

Dr. Jonathan Rayment, MSc, MD, FRCP(C)
Pediatric Respirologist

Dr. Kelly Luu, MD, FRCP(C)
Pediatrician & Clinical Associate

Nurses

Anna Gravelle, RN, MSN
Nurse Clinician

Shelagh Jenkins, RN
Clinic Nurse

Vanessa McMahon, RN, BSN
Nurse Clinician - Newborn Screening

Caroline Burgess - RN, MSN
Clinic Nurse - Newborn Screening

Physiotherapists

Dr. Maggie McIlwaine, PHD, PT
Clinic Physiotherapist

Nicole Lee-Son, Bsc, PT
Clinic Physiotherapist

Melissa Richmond, PT
Physiotherapist

Julie Fairbairn, PT
Physiotherapist

Allied Health

Christine Loong, RD
Clinic Dietician

Eva Cho, Bsc (Pharm), ACPR
Clinical Pharmacist

Tami Kolb, MSW, RSW
Social Worker, Cystic Fibrosis & Biochemical Diseases Clinics

Dr. Patrice Dunn
Clinic Psychiatrist

Research Coordinators

Haley Smith
Melissa West
Delphine Czuba

Administration

Jon De Guzman
Clinic Clerk / Administration

Louise Aromin
Finance

Clinic Fellows 2018-2019

Dr. Julie Duncan
Dr. Ajay Kavat


 


 

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