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Voice

Voice
Helping your youth develop self-advocacy, health knowledge and decision-making – to the best of their ability.

Tips and Links

  • Start early! Begin to take on a coaching role and encourage youth to talk about their health condition and ask questions.
  • Encourage health care providers and others to direct questions to your youth.
  • Complete the Youth Quiz together every year – starting at age 12 – to identify where they are at.
  • Work through the Youth Toolkit Activity Cards to help youth develop skills and knowledge as he/she is able.
  • Support your youth as they create their own MyHealthPassport.
  • Hear from other parents about ‘letting go’ and helping youth find their voice.
  • Check out this online booklet to foster self-determination among children and youth.

Activities For Youth

What I Need To Know About My Health ConditionWhat Would You Tell A Friend?Be Your own Best Advocate
 

Tips and Links

Activities For Families

ON TRAC Transition TimelineEasy for You to Say!PLAN Worksheets to create understanding and build networks


Activities For Youth

What I Need To Know About My Health ConditionA Note To My Family PhysicianGetting Ready for a Health Care AppointmentGoal Setting 101 Worksheet
 

Tips and Links

  • Together, make a list of signs, symptoms, and complications related to their condition or medications.
  • Just TRAC it!: Record  “red flags” – signs and symptoms – as they occur on your Calendar app or paper calendar.
  • Support youth in using mobile online tools to track their symptoms, like ‘Seizure Tracker.
  • Identify a health care advocate – others who can help in times of illness.
  • Try the BC Health Services Locator app to locate services throughout the province.

Activities For Youth

A Health Care AdvocateAn Emergency PlanCanadian Medic Alert Membership
 

Tips and Links

  • Ask health care providers about future health concerns, progression of illness/disabilities, or late effects to treatment and/or medications.
  • Connect with other parent/families that have youth/young adults with similar health conditions.
  • Use reference websites and resources suggested by your health care providers – HealthLink BC.
  • iheartchange.org​ is a transition site for youth with a heart condition – learn all about making the move to adult care.


Activities For Youth

Getting Information to Make Informed Decisions
 

Tips and Links

Activities For Families

PLAN Worksheets to create understanding and build networks


Activities For Youth

Consent in Health Care: A Guide for YouthIf You are Going to Help MeRights and Safeguards: A Guide for Self-Advocates
 
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SOURCE: Voice ( )
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